A place to call home, where you are never alone
by Nancy Barry
I founded Pierre Robin Network in May of 1999 because I don't
want any other parent to go through these issues alone. My son was born in
1988 and I had no one to turn to who had parented a child with PRS. The
medical professionals were great, but they didn't live with a child with PRS.
Our biggest presence is on the Internet but we are expanding to reach those
without Internet access. We will be publishing a newsletter this year to reach
families without Internet access.
Pierre Robin Network
Quincy, IL 62305
DISCLAIMER: This site and the Pierre Robin Email List server, and the
information contained within them, are designed to be relevant to
parents, adults and professionals interested in PRS. The information
supplied here is not to be used as a diagnostic tool and is not intended
to replace or supplement individual medical consultation. Please take
this information to your child's physician or your physician and discuss
it together. Pierre Robin Network, the author of these pages and the
members of the email list server accept no responsibility for the misuse
of the information contained within this website or within the email
list server messages and files.